e-Patient AI

  In this Q&A segment from the Tools for Thought series, Kazuki Nakayashiki, co-founder of Glasp, discusses the motivation and vision behind the social web clipper. Glasp allows users to share highlights and notes directly from the web without needing to switch to a note-taking app. Nakayashiki shares that a near-death experience at age 20 inspired him to create Glasp. After experiencing a sudden subdural hematoma, he realized the importance of leaving behind a legacy that contributes to humanity. This realization motivated him to tackle the problem of knowledge isolation, where personal insights are lost after one's death if kept in private. Glasp aims to address this by facilitating collective intelligence and social knowledge management, allowing shared learning to benefit future generations. The interview also touches on themes like serendipitous spaced repetition, learning in public, and the impact of social accountability on note-taking. (Source: NessLabs -   Bu...

  In this 2017 article " What My 90-Year-Old Mom Taught Me About The Future Of AI In Health Care ," Dr. Isaac Kohane shares a personal experience managing his elderly mother's heart dysfunction with digital health tools and AI insights. Kohane's 90-year-old mother, despite her health challenges, continues to live independently. Using a Fitbit scale, he monitored her weight daily to manage her fluid balance, implementing a simple algorithm to adjust her Lasix dosage based on weight changes. This approach, though unconventional and often met with skepticism from his medical peers, successfully kept her out of the hospital for over a year. Kohane highlights the potential of AI in health care, noting that while AI has achieved remarkable successes in specific tasks, such as identifying cancer cells, it struggles with the complex, multifaceted nature of human health, especially in elderly patients. He argues that AI should not be expected to surpass human capabilities but ...

  Elizabeth Cohen's book, The Empowered Patient, was released on August 10, 2010. She included Trisha in the chapter about when your doctor is wrong - misdiagnosis. Here the two chat about that chapter along side Ali Velshi on August 11, 2010.

  My Health Counts!, WNED PBSs six-part series hosted by Susan Hunt, focuses on the fundamentals of health and wellness—encouraging people to partner with their doctors and other members of their healthcare team; fostering self-management skills and giving people a better understanding of how to recognize and receive quality care. Nov 6, 2012 As advances in technology and the internet bring us closer to information and each other, a new world of Participatory Medicine is evolving in which networked patients are shifting from mere passengers to responsible drivers of their health.  My Health Counts! e-Patients explores what it means to be an e-patient in this information age--empowered, engaged, equipped and enabled.  Host Susan Hunt is joined by Lygeia Ricciardi, senior policy advisor for Consumer e-Health at the U.S. Department of Health and Human Services and "e-patient Dave" deBronkart, to talk about how technology--from personal health records, patient portals and ho...

  Digital Mental Health Technologies: A Transformative Intersection Innovating Mental Health Policy and Technology: A New Horizon How the Meadows Mental Health Policy Institute is Leading the Charge in Digital Mental Health In a riveting conversation at the Behavioral Health Tech Conference, host Solome Tibebu engages with Dr. Andy Keller, CEO of the Meadows Mental Health Policy Institute, to delve into the groundbreaking work being done at the intersection of policy and digital mental health technologies. This conversation sheds light on how these innovations are poised to transform mental health care across the United States. 1. Intro (0:00) In the introduction, Solome Tibebu sets the stage for the discussion, welcoming Dr. Andy Keller and highlighting the significance of his work. Dr. Keller provides an overview of the Meadows Mental Health Policy Institute, emphasizing its unique role as a think tank that operates at the intersection of policy and mental health programs. The in...

These health IT influencers are change-makers, innovators, and compassionate leaders seeking to prepare the industry for emerging trends and improve patient care. By Jordan Scott and Teta Alim ( Health Tech ) Introduction What does it mean to transform healthcare? For some, it means centering patients in conversations about their care and interactions with the healthcare system. For others, it means using tools such as artificial intelligence to support clinical decision-making. Many in the field are also focused on improving access to care with virtual care solutions. To celebrate the leaders, researchers, and advocates who are creating a better future for healthcare, HealthTech has compiled a list of 30 healthcare IT influencers driving innovation, equity, and change in the healthcare space. Follow these leaders for valuable insights into the quickly evolving worlds of AI, digital health, and patient care. Did your blog, podcast, or account make our 2024 Health IT Influencer List? If...

  The Patient Revolution: How Grassroots Health Activism is Reshaping Care Susannah Fox's "Rebel Health" Outlines a New Paradigm of Patient Empowerment and Peer-Led Innovation In an era of skyrocketing healthcare costs, physician burnout, and systemic challenges, a quiet revolution is brewing. Patients, survivors, and caregivers are taking matters into their own hands, forming communities, sharing knowledge, and even developing innovative solutions to longstanding medical problems. This grassroots movement, explored in depth in Susannah Fox's groundbreaking new book "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care," is reshaping the landscape of healthcare from the ground up. Fox, a former Chief Technology Officer for the U.S. Department of Health and Human Services and a veteran health and technology strategist, has spent over two decades studying how people use the internet to connect with health information and, more importantl...

  0:00 - Introduction 3:11 - OpenNotes Lab 6:18 - Generative AI + care 8:39 - What can we expect from OpenNote's Lab?

Rebel Health is clear, well-reasoned, and documented with dozens of case histories, several of which I know first-hand to be true. It’s an absolute must-read if you want to understand patient reality in an evolving cultural and technological space. “We are lab rats tapping out messages on the bars of our cages.” - an e-patient, 2002 I first heard those words from Susannah Fox in 2008. It was a report she’d found from a proto-early networked patient describing what it was like to connect with others in the earliest days of online life. She was director of the Pew Internet Health Project, and I - like the patients she writes about in Rebel Health - had benefited tremendously from wisdom I’d found in a patient community. I had just survived a near-fatal cancer months earlier, then met her at a retreat. Every word she spoke there was gold, and this book reveals the synthesis she can now add, to put in context, after fifteen more years. It’s essential that I start by making clear: I know th...